On Monday, you read about Candice of Embrace Gluten-Free’s trip to El Salvador. Today, I want to tell you about the Celiac Association of El Salvador officially known as Asociación de Celíacos y Sensibles al Gluten de El Salvador (ACELYSES). Started in 2010, ACELYSES “is a nonprofit organization created to help improve the living conditions of people with celiac disease and gluten-sensitive in the country.”
With an active Facebook page and an interesting (yet not so active) blog, the Asociación de Celíacos y Sensibles al Gluten de El Salvador is a great resource for those with Celiac Disease living or traveling to El Salvador.
For those of you that can read Spanish, there is a very comprehensive and FREE e-book that the ACELYSES made me aware of and contributed to available online now. This book is called “Enfermedad celíaca y sensibilidad al gluten no celíaca” or “Celiac disease and non-celiac gluten sensitivity.’ This is a great resource for those of you living with Celiac in a Spanish-speaking country.
According to ACELYSES and translated via Google translate:
In El Salvador celiac disease is still a little known entity. Between July and August 2012 we have studied the human leukocyte antigen HLA-DQ in 35 confirmed celiac patients, 30 relatives of celiacs and others who were in the process to rule whether or not suffering from celiac disease. The process of typing of HLA-DQA1 and HLA-DQB1 consisted extracting genomic DNA from peripheral blood in EDTA. By means of polymerase chain reaction amplified exon 2 to generate amplicons typing low to medium resolution. Tipando in a medium in combined single strand conformation polymorphism assay heteroduplex by a semiautomated gel electrophoresis and staining method the PhastSystem.
The series includes people between 19 and 77 years, of the 35 celiac (27 women and 8 men), are inhabitants of urban areas, 33 with biopsy compatible with CD and two who have not yet practiced them. Were 26 positive carriers risk heterodimers, with the following distribution: 15 HLA-DQ8 (12 women and 3 men), 9 HLA-DQ2 (5 women and 4 men), 2 women HLA-DQ2 and DQ8 and 9 cases of people No No DQ8 DQ2. Of the 21 relatives belonging to 7 groups confirmed celiac relatives: 17 were carriers of risk alleles.
The results of these studies on HLA-DQ are the first to be published in El Salvador and confirm the clinical diagnosis of celiac disease.
Please share this with your Spanish-speaking doctors to educate them about Celiac Disease! You can find the entire PDF here: Enfermedad celíaca y sensibilidad al gluten no celíaca