On Monday, you read about Candice of Embrace Gluten-Free’s trip to El Salvador. Today, I want to tell you about the Celiac Association of El Salvador officially known as Asociación de Celíacos y Sensibles al Gluten de El Salvador (ACELYSES). Started in 2010, ACELYSES “is a nonprofit organization created to help improve the living conditions of people with celiac disease and gluten-sensitive in the country.”
With an active Facebook page and an interesting (yet not so active) blog, the Asociación de Celíacos y Sensibles al Gluten de El Salvador is a great resource for those with Celiac Disease living or traveling to El Salvador.
For those of you that can read Spanish, there is a very comprehensive and FREE e-book that the ACELYSES made me aware of and contributed to available online now. This book is called “Enfermedad celíaca y sensibilidad al gluten no celíaca” or “Celiac disease and non-celiac gluten sensitivity.’ This is a great resource for those of you living with Celiac in a Spanish-speaking country.
According to ACELYSES and translated via Google translate:
In El Salvador celiac disease is still a little known entity. Between July and August 2012 we have studied the human leukocyte antigen HLA-DQ in 35 confirmed celiac patients, 30 relatives of celiacs and others who were in the process to rule whether or not suffering from celiac disease. The process of typing of HLA-DQA1 and HLA-DQB1 consisted extracting genomic DNA from peripheral blood in EDTA. By means of polymerase chain reaction amplified exon 2 to generate amplicons typing low to medium resolution. Tipando in a medium in combined single strand conformation polymorphism assay heteroduplex by a semiautomated gel electrophoresis and staining method the PhastSystem.
The series includes people between 19 and 77 years, of the 35 celiac (27 women and 8 men), are inhabitants of urban areas, 33 with biopsy compatible with CD and two who have not yet practiced them. Were 26 positive carriers risk heterodimers, with the following distribution: 15 HLA-DQ8 (12 women and 3 men), 9 HLA-DQ2 (5 women and 4 men), 2 women HLA-DQ2 and DQ8 and 9 cases of people No No DQ8 DQ2. Of the 21 relatives belonging to 7 groups confirmed celiac relatives: 17 were carriers of risk alleles.
The results of these studies on HLA-DQ are the first to be published in El Salvador and confirm the clinical diagnosis of celiac disease.
Please share this with your Spanish-speaking doctors to educate them about Celiac Disease! You can find the entire PDF here: Enfermedad celíaca y sensibilidad al gluten no celíaca
Thank you Erin for this post about the work we do in the Asociación de Celíacos y Sensibles al Gluten de El Salvador (ACELYSES). Surely this publication helps in the dissemination, education and awareness of celiac disease and gluten sensitivity not only in El Salvador but throughout the world.
Best wishes!